Little Hearts Matter, a charity who have supported us since Danny was diagnosed with Hypoploastic Left Heart Syndrome shortly after birth, asked for Mums to send in photos of themselves with their HLHS children to celebrate this upcoming Mother’s Day. I couldn’t just pick one, so have chosen a couple of shots of us together from over the years.
|I am jaundiced here post CS- not fake tanned!
This is the first photo of me with Danny. It’s not the “first photo” that I had imagined I would have with my baby but then nothing does go as planned. Here, we have just arrived in Cardiff after being transported by ambulance from Haverfordwest. At this point, we didn’t know what was wrong with poor Danny, just that he couldn’t breathe for himself and was seriously ill.
Here we are in Birmingham, where he was transferred to soon after diagnosis. This photo shows our first cuddle since his birth. It was bitter sweet. Every mum knows how they long to cuddle their baby, but he had just had a huge operation and I could tell that he was in discomfort. I was also worried that if I pulled one of his leads it would cause him more pain or harm him. My breasts ached to feed him and I wanted to squeeze him in close to me and never let him go but I had to give him the space to recover and get better.
Here Danny has had his first two major operations and is on the waiting list for his third one. We love taking part in Comic Relief every year.
Here Danny’s sisters, Rebecca and Caitlyn and cousin Cerys join us in the photo. We are at our friend, Caroline’s Wedding. This was a lovely, special, family event.
Here is a proud Mum with her little Cub Scout on Remembrance Sunday 2011. Danny is now a Scout and loving it!
This is us last week on the way to his Gym Competiton.
And lastly, our most recent photo together, taken by Rebecca in the Garden today.
Thanks everyone at Little Hearts matters for all the support you have given us over the years- we look forward to seeing you all Saturday at the Open Day!